The mysteries of ST

ST is an enigmatic disorder indeed. Consider the following mysteries.

  • Why does ST affect women twice as frequently as men?
  • Why does the onset of ST occur most often just after 40?
  • Why do many people with ST have sensory tricks?
  • Why does a significant fraction of people on neuroleptics develop acute dystonia?
  • Why is ST often accompanied by TMD, ear problems, thyroid problems, and scoliosis?
  • Why do people with ST have a specific set of character traits in common?
  • Why do spontaneous remissions occur?
  • And last but not least: what really causes ST?

When asked, a neurologist won’t be able to answer any of these questions.

In the Phenomena section of this blog – soon to be added – I will elaborate on the above mysteries, in order to provide a basis that will allow us to start unraveling them. Although I am a scientist by training, I won’t attempt to provide hard scientific proof for all statements made. (Hard proof requires costly, labour-intensive research.) But I will try to make my views plausible. I am sure that can be done with common sense and adequate gut feeling.  And I will need your feedback to validate, fine-tune and/or amend my views.

Tomorrow is D-Day! I have been very busy preparing my departure and packing my things. That has caused some additional stress, nerves and lack of sleep – not good for my neck. But soon I’ll be able to settle down in my new environment. Dr. Lee sent me a message today, telling me that he will be able to pick me up at the airport, because he needs to drop off a family member at the time I arrive. That will definitely save me the trouble of finding my way through public transportation.

I can’t wait to meet him!

7 thoughts on “The mysteries of ST

  1. Dear CCD,
    Have a very good journey! Once on the plane you can relax. That normally for some reason happens with me once I am on the long haul planes. It is almost that I should spend ther rest om my life in the air. Of course all the preparations would have caused exra stress. They always do. Nice of dr. Lee to pick you up to avoid another stress this time to deal with with a new environment.
    In your list about who is affected by ST you mention that thyroid problem is a possible factor. I have not mentioned to you that I have an underactive thyroid since my early twenties and that is about 40 years I have lived with suppstiduted the thyroxin (adding). Just some info for you to help to unravel the mystery because it truely is a mystery.
    All the best and I sincerely hope it works. Carina

    • Thanks for validating the thyroid mystery! It won’t be easy to unravel this particular sub-mystery, but I will certainly offer some views in the coming weeks.
      And thank you for your kind words. My best regards from Moscow airport, where I am starting to relax indeed…

  2. Oh my God…. Neuroleptics have to something to do with CD? Although my neck started twitching since 2006, I actually was prescribed Zyprexa for my anxiety(or depression…can’t remember which one) in 2008. By coincidence, I visited a neurologist not long after, and she advised me to quit Zyprexa immediately.

    I would be so mad if the antipsychotic actually caused/worsened my (not-yet-officially-diagnosed) CD.

    • Thanks for your message. Well, this site focuses on cervical dystonia, not on blepharospasm. But you can read the page “Treatments” of this site to find alternative healing methods that people have applied for CD.

      One of the things you could try, is blue-green algae from lake Klamath. See the page “Treatments”. I took these algae but they didn’t help me much. Nevertheless, the man who claims that they are effective, primarily focuses on blepharospasm.

      Good luck!

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